This programme aims to improve care for young people who are in the ‘transition’ process from children’s to adults’ community healthcare.

Young people who have been diagnosed with a long term health condition during childhood are supported by dedicated children’s services, working with their parent(s) or guardian(s). Once people reach young adulthood, they need to transition to adult health services. This process can be stressful and confusing for young people and their families, if for example there are gaps in communication or lack of joined-up working.

Online Resource

We have produced an online learning resource for community nurses, to help them understand the issues that young people and their families face. The resource aims to improve practice in this key area and improve the experience of young patients. Click below to open the resource.

The QNI held ten focus groups in different parts of the country and conducted three surveys, as well as undertaking wider stakeholder involvement. In all, the views of around 900 people were gathered. A summary of the focus groups and a review of academic literature in this area can be downloaded below.

Blogs

The project was led by Queen’s Nurse Dr Candice Pellett, who has written a blog about the process.

Candice was assisted by a young person who had experienced the transition process, Hannah Phillips. Hannah wrote a blog about her experience in January 2017. In September 2017, Hannah wrote a second blog entitled ‘Appreciation.

Downloads

You can download a range of documents produced during the project below.

Conference

We held a Transition of Care conference in London in November 2017.

Patient Leader, Ambassador, Young People and Palliative Care Advocate, Speaker and Blogger, Lucy Watts MBE opened the day as part of a panel session: ‘Young adulthood – Can we be skilled helpers?’ Hannah Phillips, QNI Project Advisory Group Member also spoke on ‘Transition through a patient’s eyes’.

Please download the Transition of Care Conference Summary Notes and slides from the day below.

This project would not have been possible without the funding we received from The Burdett Trust for Nursing.

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