Transition of Care Programme
Managing the transition from children’s to adults’ community services
This programme aims to improve care for young people who are in the ‘transition’ process from children’s to adults’ community healthcare.
Young people who have been diagnosed with a long term health condition during childhood are supported by dedicated children’s services, working with their parent(s) or guardian(s). Once people reach young adulthood, they need to transition to adult health services. This process can be stressful and confusing for young people and their families, if for example there are gaps in communication or lack of joined up working.
We held a Transition of Care conference in London at The Royal College of General Practitioners on Friday 10th November 2017.
It was a fantastic day with over 250 delegates joining us. Please download the Transition of Care Conference Summary Notes and slides from the day from the download block below.
Patient Leader, Ambassador, Young People and Palliative Care Advocate, Speaker and Blogger, Lucy Watts MBE opened the day as part of a panel session: ‘Young adulthood – Can we be skilled helpers?’. She has written a fantastic blog about the day which is available on her website.
Hannah Phillips, QNI Project Advisory Group Member who spoke on ‘Transition through a patient’s eyes’ has also written an amazing blog post following the event. Hannah’s blog post, ‘Choosing to speak the truth in front of 200 people’ can be read on her website.
We have produced an online learning resource, ‘Transition of Care Programme’ for community nurses, to help them understand the issues that young people (and their families) face. The resource aims to improve practice in this key area and improve the experience of young patients.
Click on this link to open the resource:
The QNI held ten focus groups in different parts of the country and conducted three surveys, as well as undertaking wider stakeholder involvement. In all, the views of around 900 people were used to inform the resource. A summary of the focus groups and a review of academic literature in this area can be downloaded below.
The project is led by Queen’s Nurse Dr Candice Pellett OBE, who has written a blog about the process.
Candice was assisted by a young person who had experienced the transition process, Hannah Phillips. Hannah wrote a blog about her experience in January 2017.
In September 2017, Hannah wrote further reflections in a new blog entitled ‘Appreciation.‘
Following the Transition Conference Hannah, who spoke on ‘Transition through a patient’s eyes’ has written an blog post which can be read on her website.
Patient Leader, Ambassador, Young People and Palliative Care Advocate, Speaker and Blogger, Lucy Watts MBE has also written a fantastic blog about the conference which is available on her website.
Transition of Care Online Survey 2016 Summary
Part of this project involved collecting data via online surveys. You can also download a summary of all online transition of care surveys below.
This project would not be possible without the funding we have received from The Burdett Trust for Nursing.