Transition of Care Programme
Managing the transition from children’s to adults’ community services
This programme aims to improve care for young people who are in the ‘transition’ process from children’s to adults’ community healthcare.
Young people who have been diagnosed with a long term health condition during childhood are supported by dedicated children’s services, working with their parent(s) or guardian(s). Once people reach young adulthood, they need to transition to adult health services. This process can be stressful and confusing for young people and their families, if for example there are gaps in communication or lack of joined up working.
We have produced an online learning resource, ‘Transition of Care Programme’ for community nurses, to help them understand the issues that young people (and their families) face. The resource aims to improve practice in this key area and improve the experience of young patients.
Click on this link to open the resource:
The QNI held ten focus groups in different parts of the country and conducted three surveys, as well as undertaking wider stakeholder involvement. In all, the views of around 900 people were used to inform the resource. A summary of the focus groups and a review of academic literature in this area can be downloaded below.
The project was led by Queen’s Nurse Dr Candice Pellett, who has written a blog about the process.
Candice was assisted by a young person who had experienced the transition process, Hannah Phillips. Hannah wrote a blog about her experience in January 2017.
In September 2017, Hannah wrote a new blog entitled ‘Appreciation.‘
Following the Conference, Hannah wrote a further blog post, which can be read on her website.
Patient Leader, Ambassador, Young People and Palliative Care advocate Lucy Watts MBE also wrote a fantastic blog about the conference, available on her website.
Transition of Care Online Survey 2016 Summary
Part of this project involved collecting data via online surveys. You can also download a summary of all online transition of care surveys below.
We held a Transition of Care conference in London on Friday 10th November 2017.
Please download the Transition of Care Conference Summary Notes and slides from the day from the download block below.
Patient Leader, Ambassador, Young People and Palliative Care Advocate, Speaker and Blogger, Lucy Watts opened the day as part of a panel session: ‘Young adulthood – Can we be skilled helpers?’. She has written a fantastic blog about the day which is available on her website.
Hannah Phillips, QNI Project Advisory Group Member who spoke on ‘Transition through a patient’s eyes’ has also written an amazing blog post following the event. Hannah’s blog post, ‘Choosing to speak the truth in front of 200 people’ can be read on her website.
This project would not have been possible without the funding we received from The Burdett Trust for Nursing.