The QNI has established a nurse expert group to examine issues and practice related to the management of Long Covid in community, primary care and social care settings.

Nurses in a variety of roles in the community were brought together by the QNI last year to support the development of the resource for nurses working on Community and Primary Care: ‘Living with Covid-19 (Long Covid) and Beyond’. Contributors included senior nurses leading and delivering care in a variety of services including occupational health nursing, general practice nursing, district nursing, care home nursing and school nursing:

The Community of Practice for Long Covid is developing from this core reference group, and at the centre will be the voice of those with lived experiences of Long Covid who are receiving care from nurses in the community. The group will continue to update the resource as new research evidence emerges, with the opportunity to meet, share and learn each quarter.

Click here too view case studies of how community nursing services have adapted to the pandemic.

QNI Long Covid – Nurse Expert Group (Community of Practice) (LCNEG) Terms of Reference


The Queen’s Nursing Institute (QNI) was commissioned by NHS England and Improvement (NHSE/I) to develop a Long Covid Nurse Expert Group (Community of Practice) following the publication of the NHS After-care needs of inpatients recovering from Covid-19 guidance, published on 5th June 2020. It is predicted that there will be a ‘new wave’ of physical and emotional health problems as people, family and carers try to recover from their Covid-19 experiences, without hospitalisation and that support needs to go beyond the person with the symptoms as there is a ripple effect on the family and carers too.


To use the combined insight, expertise, knowledge and intelligence of the group to inform the Long Covid agenda by articulating the voice of community nursing. This will be articulated by:

  • Defining and shaping the role and contribution of community and primary care nurses in supporting people living with Long Covid in the community
  • Advising and raising awareness of the impact of Long Covid service delivery on the community and primary care workforce
  • Advocating for peoples’ ‘lived experience’ of Long Covid and highlighting the impact of de-conditioning and the variability of symptoms
  • Recognising and highlighting the ‘carers experience of Long Covid and the lack of support for this group.

Proposed Activity

  • To collect and share existing experiences of good practice models and have input into developing models of care provision
  • Explore opportunities to have input and influence into research to raise the awareness of nursing input into Long Covid
  • Explore opportunities for members to attend high level stakeholder meetings to represent the ‘voice of nursing’ and contribute to publications promoting the nursing role and Long Covid service delivery
  • Input into the update of the QNI Living with Covid 19 (Long Covid) resource for community and primary care nurses
  • The QNI will launch the Long Covid – Nurse Expert Group (Community of Practice) once the Terms of Reference have been adopted.


The current membership of nurses is from a wide variety of community and primary care roles, with an agreement to grow the membership slowly.

There are two experts by experience members.

The QNI to identify representation from ‘inclusion health’ and any interested nurse can apply to the group to join. There is no limit on the numbers in the group.

Proposed Ways of Working

QNI to host and chair the Long Covid – Nurse Expert Group (Community of Practice)

The group will identify two co-chairs to assist at alternate meetings

The group will meet virtually every six weeks

The group communicate and give quarterly feedback to NHSE/I who have commissioned this work.


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